RESEARCH

Our team develops proposals, conducts research studies, and publishes findings continual. We usually have at least one study in recruitment and data collection and others in the data analysis or dissemination stages. 

Studies in Progress

Vocational Fit Assessment and Employment Status in people with Intellectual Disabilities. The goal of this study is to develop and add to the Vocational Fit Assessment Tool which helps people with Intellectual Disabilities determine if certain jobs are a good match for them. 

click hear to learn more or see if you are eligible to participate

Enabling self-reported outcomes for youth with developmental disabilities: The Pediatric Evaluation of Disability Inventory-Patient Reported Outcome (PEDI-PRO). This study is trying to design a new self-report assessment software for kids, teens, and young adults with developmental disabilities. Teens and young adults can use the self-report software to report how they do everyday activities at home, school, work and the community.

​click here to learn more or see if you are eligible to participate

Evaluating the Reliability, Validity and Sensitivity to Change of Measures of Person Centered HCBS Outcome Measures (Study 5) Developing and testing more than 6 new self-report measures to be used to help people with disabilities share their experiences with the HCBS Home and Community Based Services and supports they receive.

click here to learn more or see if you are eligible to participate.

PHOTOVOICE
This study teaches young adults with Autism Spectrum Disorder (ASD) and/or Intellectual or Developmental Disabilities (I/DD) and their families how to use Photovoice to share their experiences with transportation.  Photovoice is a qualitative form of data collection where participants are asked to express their points of view or experiences by photographing scenes that highlight research themes.  The purpose of this study is to understand the barriers that young people with ASD or I/DD experience when participating in their communities and using public transportation, and also identified what they and their families think are the important supports and resources  needed to overcome these barriers. 

​click here to see some examples

The SAFE Program (SAFE: Social distancing and advocacy for personal protective equipment and employment) This study is looking at developing a training intervention called The SAFE Program for people with Autism Spectrum Disorder (ASD) and/or Intellectual and Developmental Disabilities (I/DD) that targets behaviors to increase safety and prevention of airborne diseases such as COVID-19 in the workplace.  The SAFE program provides training in an easily understood format for those with ASD and/or IDD.  It focuses on teaching specific behaviors to  reduce the risk of acquiring and transmitting COVID-19 and other airborne diseases.  Training is provided by a Peer Support Specialist with lived experience of ASD and/or IDD.

click here to learn more or see if you are eligible to participate.

Peer Support Travel Training Study
Intervention study for transitional aged youth and adults with Autism Spectrum Disorder (ASD).  Lessons and in-the-field training is provided by a Peer Interventionist who has the shared lived experience of an ASD diagnosis.  Data collection is complete for this study and we are currently working on drafting manuscripts and finding other ways for share our findings.

click here to learn more. 

Completed Research Studies

BOSE Noise Attenuating Headphone Study. This study looked at the effect of noise-attenuating headphones on participation and physiological responses in children with autism spectrum disorders.

Conclusion: Many children with ASD have hypersensitivities to sound resulting in high levels of sympathetic nervous system reactivity, which is associated with problematic behaviors and distress. The findings of this study suggest that the use of noise attenuating headphones may reduce sympathetic activation. Additionally, results suggest that the use of wearable sensors to collect physiological data from children with ASD in natural environments is feasible with established protocols and training procedures.

read the article

Participation and Sensory Environment (PSEQ) and Parent Effort Scale (PES). Two new measures of the sensory environment to be used by parents of children in the Autism Spectrum Disorder (ASD).  The PSEQ assesses the impact of the sensory environment on a child’s participation in everyday activities at home and in the community.  The PES measures how much effort a parent must put out to support their child to participate in everyday activities. This study is in ongoing data collection so parents are encouraged to use the tool.  The data provided will allow for future refinement of the tool. Since this is still a funded research study, parents will be asked to sign informed consent and complete some demographics prior to completing the assessment when they click on the link.  Scores are automatically calculated and sent to parent via email.

learn more or use the tool by going to the PSEQ/PES Website.