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Understanding Perceptions of Tumor Genomic Profile Testing in Black/African American Cancer Patients in a Qualitative Study: The Role of Medical Mistrust, Provider Communication, and Family Support

Abstract

Peer advice can provide emotional, social and practical assistance for the sustained self-management of chronic conditions. For stigmatised diseases such as HIV, finding support can be challenging. Women living with HIV in the Southern USA are additionally impacted upon by region-specific barriers such as stigma, poverty and limited access to services. The effectiveness of peer advice has been studied, yet little is known about the advice shared amongst women living with HIV. Therefore, we aimed to qualitatively explore the context and content of the advice participants offered to other women. With the assistance of a Community Clinician Advisory Board, women were recruited from across the US Centers for Disease Control and Prevention South Census Region. In-depth interviews were conducted with (N = 40) participants, aged 23 to 72 years (M = 51.2). Qualitative inductive thematic analysis was used to explore both the solicited and unprompted advice shared during individual interviews. Analysis of interview transcripts revealed three advice themes: Consistency in disease management Practical, non-medical advice; and Emotional and social support. The findings are valuable in shaping future peer-delivered programmes and interventions to enhance HIV care engagement, medication adherence, and the well-being of women living with HIV in the Southern USA.

Luck, C. C., Bass, S. B., Chertock, Y., Kelly, P. J., Singley, K., Hoadley, A., & Hall, M. J. (2024). Understanding perceptions of tumor genomic profile testing in Black/African American cancer patients in a qualitative study: The role of medical mistrust, provider communication, and Family Support. Journal of Community Genetics. https://doi.org/10.1007/s12687-024-00700-3